DEBRA CR organizations are founded all over the world - everywhere where people with butterfly wing disease live. The common goal of all DEBRA organizations is comprehensive help and support for people with butterfly wing disease. These are small and large fighters without age restrictions, who have been given a serious genetic disease, which causes the formation of very painful wounds and blisters on the skin, mucous membranes and internal organs. People with EB do not know a day without pain. Through a public collection, we support individual patients and their specific individual needs related to the treatment of this rare disease, with the improvement of their lives.
DEBRA CR - Support for people with butterfly wing disease
Product accessories
DEBRA CR - Support for people with butterfly wing disease
Support for small and large fighters - people with butterfly wing disease
Every help counts
When the butterfly disease enters the family, the parents are first stunned by the great shock. The disease comes unexpectedly, is one of the rare congenital genetic diseases and is incurable. Caring for such patients is very demanding and expensive. The family must learn to take care of their baby very professionally. In a short time, thanks to the doctors of the EB Center, he manages professional nursing techniques and other very important professional practices that accompany the patient throughout his life and are an integral part in the fight against butterfly wing disease. Special atraumatic coverage is covered by health insurance companies, but other very expensive medical aids, disinfectants, ointments, gels and other material do not. That is why DEBRA ČR is implementing a public collection for the benefit of Motýlky, from which it pays for everything it needs.
Reliable non-profit organization
Since 2015, DEBRA has been the holder of this brand, which is inspected and verified every year. The reliability mark is a guarantee for donors and the public that a public benefit organization fulfills its mission and manages the funds entrusted to it properly.
ABOUT DEBRA CR
DEBRA CR is a patient organization that has been providing a wide range of services, counseling, projects and financial assistance to people with butterfly wing disease since 2004. Approximately 350 people with butterfly wing disease live in the Czech Republic. He works closely with the Clinical EB Center, which is located under one roof in the Brno University Hospital - in the Children' s Hospital. It provides comprehensive services to small and large fighters and their parents, who are not only in the role of a loving parent, but also a professional caregiver. The patroness of DEBRA CR Jitka Čvančarová is a great support for patients, thanks to which the disease of butterfly wings is not one of the unknown diseases.
Guarantor of the organization
Mudr. Hana Buckova, Ph. D. D. is the founder of the EB Center and a leading expert in the treatment of EB diseases in the Czech Republic. She is also the founder of DEBRA CR.
Whole description
Specifications
Project goal
Target amount
100,000 CZK
Target demographic
disabled people
Location of assistance
Kraj
Capital City of Prague, Jihočeský, Jihomoravský, Karlovarský, Královéhradecký, Liberecký, Moravskoslezský, Olomoucký, Pardubický, Plzeňský, Středočeský, Ústecký, Vysočina, Zlínský
The continent where we are helping
Europe
Charity
Charity
Charity
Field of assistance
Field of assistance
Health
Basic
DRM free
1
All parameters
| Code: | NEZ00102 |