DEBRA CR

DEBRA CR is a patient organization that has been providing people with butterfly wing disease (EB) with a wide range of services, counseling and assistance since 2004. It accompanies small and large fighters who have been fighting an incurable disease EB since their birth. In this way, patients do not know a day without pain, yet thanks to the help of others they can live as much as possible, suffer as little as possible. EB is a rare congenital inherited vesicular disease. People with EB have very fine, sensitive and easily vulnerable skin. Even mild pressure or friction causes the formation of blisters and painful, open wounds on the skin and mucous membranes. Manifestations of EB are very diverse and affect the whole organism.

DEBRA CR

• helps people with butterfly wing disease and their loved ones
• provides patients with comprehensive care
• monitors their individual needs and we try to respond to them immediately
• provides professional social, psychological and nutritional counseling
• allows families to meet EB
• helps patients financially through a public collection
• implements an awareness campaign for this rare disease
• cooperates with a highly specialized clinical EB Center at the University Hospital Brno
• we belong to the international group DEBRA International, we cooperate with ERN-Skin and EB Clinet

Projects of the DEBRA CR organization

• Support for people with butterfly wing disease